Wednesday, May 11, 2011

Results!

We finally got the results of the PET Scan. After a little confusion, a brief scare, and some clarification, we are confident at this point that CJ has NO NEW EVIDENCE OF DISEASE!!!!
Exhale! Thank you Lord!

However, we did have a little hesitation in sharing this before we understood exactly what the report said.

Here's why.....
I left a message for the nurse to call with the results as soon as they were available. When I got the call this afternoon, she said that the results were in and it looked "fine".
I thought that was an interesting choice of wording considering the gravity of the situation so I clarified by asking, "The scans were clear?"
She responded that the doctor said the results "were fine".

You know how sometimes you ask someone how they are and they say they are "fine" and based on the way it is said you are left trying to interpret what kind of "fine" they are. Well, that is how I felt. Fine just did not seem........ fine. I hesitated to celebrate.

I repeated this conversation to Chris and he felt uneasy with the wording as well. We wanted to see the report or talk to the doctor but we would have to wait a few days for the results to be mailed to us. So Chris did what any anxious parent would do.....he drove to the office for the results.

Once he had the scan report in hand he was even more confused and worried so he asked to speak with the doctor.

Read it for yourself and you can see the dilemma....


"Findings: There is no new focal dominant area of intense increased uptake to suggest recurrent or residual hypermetabolic tumor at this time." if it ended here it would be great...but it went on to say... "There is new triangular elevated activity in the anterior mediastinum in a pattern suggestive of thymic rebound hyperlasia." this was the line that confused us a bit
Basically, the words "new elevated activity" were a little worrisome at first. Those are not the kind of words you ever want to see on scan reports. When Chris spoke with CJ's doctor, he clarified for us that this is common after CJ's type of cancer and chemotherapy treatments. The Thymis, an organ of the Lymphastic system, becomes enlarged as it rebounds from chemotherapy. The good news is that it is highly common post treatment and very unlikely to be cancer.

I found this on a website today...

Thymic Hyperplasia

The term hyperplasia means an increase in the number of cells within an organ, which results in a larger organ. In thymic hyperplasia, the thymus gland is larger than normal. Sometimes, physicians use the term "rebound thymic hyperplasia." This describes the thymus gland of patients who have had chemotherapy for lymphoma, or a tumor of the lymphoid tissue. After chemotherapy, the thymus gland is small, because the medication makes the gland shrink in size. After a period of time, however, the gland grows. Dr. Nason writes that it usually becomes large approximately nine months after people have stopped taking chemotherapy, but the gland can grow large in just two weeks or any time from two weeks up to a year. www.livestrong.com




After talking with CJ's doctor, we felt reassured and celebrated the fact that the most important line of the clinical report stated:

"Final Impression: There is no definite scintigraphic evidence if recurrent or residual hypermatobolic tumor at this time."

In English that means.....NO EVIDENCE OF DISEASE! NED!!! NED!!! NED!!!

Praise God! We are celebrating CJ's continued recovery and remission from cancer. We are moving forward with Port Removal and will let everyone know when we have a date.

There are no words to thank you all for your prayers and support these past couple days. Your messages were very encouraging and provided a much needed boost in our spirits. We are so grateful!

I want to share with you that while we were at the hospital for the PET Scan on Tuesday we went to visit a cancer child that was in the hospital for chemo. On the way over, we ran into one of CJ's doctors. She was on her way to meet with the "several new diagnosis" that had come in over the weekend. She remarked about the ones that were diagnosed on Sunday, "Can you imagine? Happy Mother's Day...your kid has cancer."

It really hit me again that even as we get further away from this walk through the valley of the shadow of death, we cannot forget those we leave behind or those just entering it. We have to turn around, look back and shine the light of Christ back in at them so they know which direction to head.

"For God, who said, “Let light shine out of darkness,” made his light shine in our hearts to give us the light of the knowledge of God’s glory displayed in the face of Christ." (2 Corinthians 4:6)

17 comments:

Anonymous said...

Praise God!!!! we are rejoicing with you and giving thanks to God for His faithfulness throughout this journey. CJ we are SOOOOOOOO happy for you!!!. I am really thankful that your parents decided to have this blog, now you can look back and see God's amazing work in your life through this last coulple of years. You were and are so courageous and will keep being an example to many....we love you much.

XOXO Claudia for the Abeggs.

Anonymous said...

Such wonderful news, we are soooooooooooo happy to hear NED!!
Lots of love to all of you
Nicole Ana Aleberto

Anonymous said...

Thank you Jesus for healing CJ and using him to spread your Gospel! We are so grateful & relieved, Dawn & Chris. Its been a long journey, and you have been faithful, wise & good servants. May God continue to bless your family & your ministry! We love you & miss you! Uncle Terry & Aunt Karen

Janet said...

CJ, right now, after reading this, the Sedano family is celebrating and rejoicing! NED!!! Great news, great picture of you. Praise God that you are "okay". What a journey this hard been, huh?! Well done, CJ!! I know God is going to continue to use you in a powerful way in the lives of so many. We love you!! Yahooooooo!!!! the Sedanos

Anonymous said...

PRAISE THE LORD! WE REJOICE WITH YOU! xxxooo :-)

The Gavilan Family

Anonymous said...

Hi Dawn....I'm very happy for you and CJ that is great news! Wilma

Anonymous said...

Hi Dawn....I'm very happy for you and CJ that is great news! Wilma

Anonymous said...

Fantastic News!! To God be the glory, honor, and praise forever!!

Joy and Peace,
Shannon Helton

Anonymous said...

Praise God..."Fine" is relevant, but in this case it was important! Celebrating w/ you and lets keep praying for all! Loida

Anonymous said...

We're soooo excited for you! Dawn, I cried reading your post. Not only are you an excellent writer, but your ending was very inspiring and challenging. Thank you all for being such a light during such a difficult time. You're an inspiration to the rest of us.

We love you,

Jo Anne and family

Anonymous said...

Thank you Jesus for the wonderful news!
Continued prayers and blessings for your family,
Love you,
Carmen :)

Anonymous said...

Cj,

This is Kevin. I am sooooo happy for you! That you finally got cancer free! Whenever you want to come over, feel happy to. We can play some basketball, swim, or go on the boat. I am so happy that your cancer free! Love, Kevin

Cj,
This is Travis. I am happy that your cancer free, and I hope you feel better and have a great life!
Love,
Travis

Cj.

This is Aunt Jackie. I love you so much and am so happy to hear that you are NED! I really didn't know if this day would come or not! I am so glad it did! I'm ready for my tattoo! So whenever your mom gives you permission to go to a tatto parlor with me, we will go get my CJ tat!!!!Yeah, they can come too. But, if they come, they have to get one too!!! I love you tremendously and this makes me realize that we can and need to trust our Heavenly Father with EVERY matter, not just some!

Love,

Aunt Jackie

CJ,

This is Kyle. Come see my room!

Kyle

Anonymous said...

PRAISES AND AMEN!!!!!

Jeannie B

Anonymous said...

Great news on CJ!! May he continue to be blessed and enjoy his good health!!

Tatianna L

Anonymous said...

Dawn,
Praise God!
Prayers answered!

Linda Cummings

Sonia said...

We are so very very happy for the wonderful new. Finally the results of the tremendous challenge that God gave you is over, we hope that for ever. Give a big hook to CJ form us, let him to know that we still care for him a his health. So congratulations to all of you and keep in your path.
With love,
Sonia, Antonio, Andrea y Alejandra.

Billy Long said...

Dawn, Glad to hear the good news, and sorry for the brief anxiety period you had to experience. Please give my love to CJ. Also, I keep him and your family in my daily prayers. I am still in the Miami area. I hope to be able to visit and say hello before I finish the work here.
Bless you all.
Billy